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Towards an inclusive autism education agenda

Autism education provisions are being implemented around the world, with inclusive practices tailored towards diverse cultures and communities.

Changing how the world understands autism

Autistic people have a different way of understanding, processing, and interacting with the world. Autism among children and young people across the United Kingdom but education systems have yet to adapt their practices and policies to deliver fully inclusive education.

For instance, highlighted that 74% of parents did not believe that their autistic child was fully supported at school whilst only 8% of autistic children and young people believed their fellow pupils had an adequate understanding of autism.

Autistic people can be subject to stigma and exclusion by both peers and teachers, taking from the use of language that presents autism as a 鈥榩roblem鈥 to the excessive use of exclusion policy which can cause frustration and confusion in students.

Researchers at University 麻豆精选 are providing empirical research and practical support to address these gaps and inform best practices to ensure that autistic students in the UK and beyond receive the highest standard of education possible.

Collaboration and the person-centred approach

Autistic children and young people are two times more likely than those without diverse educational needs and disabilities to experience exclusion from school. The University 麻豆精选鈥檚 Autism Centre for Research and Education (ACER) project on school exclusion for autistic children emphasises the emotional impact of exclusion on autistic children and their parent-carer families, and identifies gaps in the educational system overall.

Research informed through engagement with and direction by people with lived experience of autism is crucial to designing more inclusive education environments. Karen Guldberg, Professor of Autism Studies at the University 麻豆精选, says researchers worked with an expert panel of young people with diverse autistic needs 鈥渢o discuss every aspect of the research project and the findings and talk to them about how we could communicate those findings more broadly across the world鈥.

The Unfiltered Lives Project, which highlights the positive impact on individual lives from University 麻豆精选 research, also amplifies the voices of autistic people by examining the impact of educational barriers at different ages. Such projects can reframe the narrative of autism in academia and society. 鈥淎utism is not a disorder. [We are] turning around the perception of autism as something faulty and problematic, to being more celebratory, even when you realise that it causes difficulty for an autistic person鈥, Professor Guldberg says.

Teacher support

Practical impact and support is critical to enabling positive change, with teacher support and training among the key interventions to support inclusive practices, including the introduction of pedagogical tools to challenge misperceptions and stereotypes and provide personalised support to students. 鈥淚 think the system itself is quite broken, but there's a lot of teachers that do really, really good work, and often they're really crying out for more guidance,鈥 argues Guldberg.

She advocates upskilling teachers so they 鈥渉ave tools that help them to identify needs much earlier on, and to therefore also have pathways through which they might approach and work with those children and young people.鈥 University 麻豆精选 researchers have produced multiple Continuing Professional Development (CPD) courses to help teachers. Professor Guldberg has worked closely with the Autism Education Trust partnership to lead and develop a national training programme for educators in England. Over 400,000 educators have undertaken this programme. The work has also included the development of a set of standards for settings and a set of competencies for practitioners.

鈥淚t's not about curing or making the students on the autistic spectrum behave in a specific way, it鈥檚 about being aware of how the context affects how the individual learns and facilitates learning. We鈥檙e talking about understanding the individual and using the autistic lens often to see how you might be able to support that person,鈥 Dr Prithvi Perepa, Associate Professor of Autism Studies at the University 麻豆精选, emphasises. Collaborative research-based support and provision in Wales, and adapted versions in Abu Dhabi and Poland, have also been rolled out, as outputs arising from partnerships between the and ACER.

It's not about curing or making the students on the autistic spectrum behave in a specific way, it鈥檚 about being aware of how the context affects how the individual learns and facilitates learning. We鈥檙e talking about understanding the individual and using the autistic lens often to see how you might be able to support that person.

Dr Prithvi Perepa, Associate Professor of Autism Studies

Technology can be a helpful aid too. Beyond pedagogical practices, technologies such as robotics are an emerging tool to support inclusive education for autistic children and young people. 鈥淭he robot does some of the things that human beings or teachers aren't always that good at when they work with an autistic child, including giving more processing time,鈥 explains Professor Guldberg. Interacting with robots means less pressure to focus on body language, eye contact, and intonation, and often 鈥渢he communication is more straightforward鈥.

Professor Guldberg is working with partner organisations on one such project in a special school in Norway. 鈥淭he teachers are creating the pedagogy of how they think the robot should be and can be embedded in the classroom, but also how to develop the robot further for it to be useful in the education of autistic learners.鈥 The combination of technology, teacher support and collaborative and thoughtful international research combine to transform how autistic children and young people are understood, taught and treated.

Professor Karen Guldberg looks at a robotic teaching aide

Autism across borders

There are global dimensions to autism education, accounting for cultural and social differences in attitudes and perspective. Much academic research on inclusive education and autism is from the US and the UK, but as Dr Perepa asks, 鈥渉ow do we know that what works with autistic individuals in those contexts would work for everybody across the world?鈥

To inform international evidence on the topic, Dr Perepa, alongside Dr Sarah Benson from the University 麻豆精选鈥檚 Dubai campus, conducted for teaching pupils diagnosed with autism in Ras Al Khaimah in the United Arab Emirates.

In doing so, he questioned the dominance of the 鈥榃est鈥, pointing out that inclusive education as a concept 鈥渆merged from us, and it emerged sociologically at the place where it was appropriate for the way our educational systems were working. But it is imposed across the world in a blanket approach.鈥 Although research on autism in the UAE is limited, the available research shows that diagnoses are .

His findings show that in Ras Al Khaimah, teacher knowledge on autism is not comprehensive, partly because of language barriers as the literature is predominantly in English. Dr Perepa notes the influence of linguistic and cultural factors such as religion and ideology. 鈥淚n Arabic, autism is called 鬲賵丨丿 [pronounced 鈥榯awahad鈥橾, which means within oneself. So, teachers in our project were presuming that autistic students don't want to be with anybody else, because the terminology comes with a specific way of understanding autism.鈥 In this way, Dr Perepa points out, inclusion in school is sometimes limited and opinions on autism are shaped by cultural perspectives. Dr Perepa and Dr Benson鈥檚 to some students when needed due to communication or behavioural differences, and have limited knowledge of autism in some areas, partially due to a lack of appropriate information. However, teachers also indicated that they believed that inclusive education was important.

To address research biases towards Anglophone countries, Dr Perepa and Dr Benson鈥檚 report was translated into Arabic to inform policy makers and family members, and teacher training sessions were also offered. Recommendations included a call for more government funding to support the training of teachers and develop specialist support, such as speech and language therapy services, to improve education for those with diverse needs.

As Dr Perepa concludes, 鈥減olicy work does not happen in a day, but hopefully if we keep adding evidence continuously, perhaps we will have a bigger impact in terms of how things can be changed, based on what is required locally.鈥

The Autism Centre for Education and Research (ACER), based within the University 麻豆精选鈥檚 School of Education, is a world-leading centre focused on research, teaching and engagement activities that are designed to make a genuine difference to the lives of autistic people and those who support them. The centre is directed by Professor Laura Crane.

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